Monday, May 16, 2011

Great news hard to swallow news

Went to the eye Dr. last Tuesday and the Dr. was able to determine that Maddox is extremely near sided.  The only thing we ever got from the other Dr. is until he can tell us what he can see we will never know if he can see.  Kind of a hard thing to wait for when you dealing with a severely delayed child.  Makes me sad to know if I would have gotten a second opinion sooner maybe he would be just a little further along in his development, but now that we are on the right path, I can only keep on hoping for the best. He will be getting glasses sometime this week and also I will be administering an eye drop in his eye once a week to keep them dilated so that he can bring in more light to see as much as possible.

That was last week, the week before brought us some other news.  We met with a physical medical and rehabilitation Dr. for the first time on Monday before that.  She was a fantastic Dr. Really seemed to know her stuff and for the most part gave us some pretty optimistic news, until the end.  When she sprung on me that she wanted to add some more diagnosis to Maddox's condition.  She has now added cerebral palsy and quadriplegic.   That one was hard to hear.  The cerebral palsy we always kinda knew would come since he has so much of his brain missing, but the quadriplegic very hard to hear.  Here you have a very actively kicking child.  Moving, squirming, etc... but since so much of his brain is missing and damaged, the quadrant of his brain that controls his motor skills is the part that is damaged, and he is very weak in all for quadrants.  That is the reason for the new diagnosis. 

Oh well, we will keep rolling with the punches.  He is worth every hit!