Monday, January 21, 2013

New Year 2013

Hope everyone had a fantastic Christmas and New year.  It was again an adventure at our house. 

After everyone started school, all the cooties came home with them.  Since this was Maddox's first year exposed to all the cooties the sickness began and along with them came the spasms after spasms after spasms.  Sometimes more then 50 a day.  I went through so much diastat that I was having to go refill every 2 weeks.  On our visit to Dr. Von Allmen he was having one of his spasm days.  Arm twitching, leg twitching, but still able to talk (babble) during them and of course suck his paci.  Dr. Von Allmen decided to start him on Onfi.  A new drug for what she said, kiddos like Maddox needed to get through the day without continuously spasming.  After hunting it down in the Houston and surrounding areas. I picked up the prescription in Magnolia and started it right away.  After about 4 days of the medicine the spasms stopped and since that we have had maybe 20 total and that is a high number, but it's been months (since October).  So to go months with maybe 20, from days with more then 50, we feel very fortunate. 

Devon began his Air Force bootcamp on November 6th.  He went off to Lackland Air Force base in San Antonio, TX.  And he just graduated from bootcamp on January 4th.  We all made our way up there to hang out in the freezing weather and sleet.  It was super cold, but super worth watching my 18 year old baby do something so awesome.

 
Halloween was great and the beginning of the holiday season at our house.  Paw Paw (my dad) the Saturday after Thanksgiving called me and told me he was so sick that he couldn't drive himself to the hospital.  This is from the rock of our family so I knew something was wrong.  His wife has severe Alzheimer's so she needs to be tended to at all times and also could not drive him. So after picking him up and taking him to the hospital for what he thought was a tooth ache, turned into an 8 day stay at the hospital.  First after sending him home the 1st night with antibiotics, painkillers and zofran, we ended back up at the hospital the next morning.  His BP was super high and they couldn't figure out why.  First they thought stroke, then they thought severe jaw cancer.  Turned out to be a very rare case of the shingles.  Hunter Ramsey disease.  We feel very blessed that it was something manageable and not something terminal.  He is still hurting cause of the nerve damage and bells palsy, but again, very fortunate and blessed to only be in pain.  The 21st of December we got a call from Gigi (my mom).  She was back in the hospital with congestive heart failure.  She had this 7 years ago when Marissa was 5 weeks old.  They thought she had a blockage and was going to have a heart attack or a stroke, but it was congestive heart failure.  They did a heart catheter and everything looked good.  The Dr. limited her fluid intake and she got to come home on Christmas eve.  We have been so very blessed that everything that at first seemed so horrible all turned out to be manageable and everyone is her still with us. 

We did have some bad things happen.  Maddox's hydro friend Tre earned his angel wings right after he had his first birthday.  He was a sweet little baby and he will be missed by everyone that meet him. 

So here we are at the beginning of the year and we already are all trying to recover from the holidays and now from foot problems.  Michael just had foot surgery on Friday and it is super gross.  I have nicknamed his toe "frankentoe".  I pulled a ligament in my foot and finally went to the Dr. because it was making everything from the waist down hurt.  And now me and Michael have matching boots.  It sucks when you have to pay $200 for one boot and it's not even a cute one : ). 

It is that time of year where all our appts for every 6 months is coming up.  Next is trying to get speech therapy set up and then a new geneticist. 

Here are some of our pictures from the holidays.

 
Marissa on Halloween. 
 
 
 
Maddox on Halloween.  He was the singer from LMFAO and then after the hair came off he was Elton John :)
 
 
Last picture I got of all of my babies together.  The pretty girl next to Devon is Maddy.  She is Devon's girlfriend and totally fits in our crazy family.
 
 
Here they are in true form : )