Maddox's Story: It's been a while

It's been a while since I have been on and added anything to the blog. I will try and be more current with the news. We did our Hydro Angels over Texas walk in October in New Braunfels. It was awesome. Maddox slept through the whole thing, but it was great to see all the people there that are dealing with the same thing we are. I met Sheri (founder of Hydro Angels over Texas). She is an awesome person and has helped me become an Hydro Angel and start a NW Houston Hydrocephalus support group. I have my first meeting April 7. I was the only attendee, but I know one day, I will have at least one more person. Thanksgiving came, followed by Christmas. And from December 26th, someone in our house has been sick with one thing or the the other. We had the flu, stomach virus, sinus infections, virus's, more sinus infections and more random virus's and it still hasn't ended. It is now April 8th. And anytime Maddox gets sick, it takes him a lot longer to get over it. If it takes us 3-5 days, it takes him 3-5 weeks. So needless to say, he has been sick a lot lately.

Since January we have been lucky enough to get a physical therapist and speech therapist started about a week ago. Maddox has made great strides (for Maddox) since Ms. Wendy has started coming. He is now holding his head up, unless he's tired or just had an episode (epileptic spasm). He is starting to bear weight on his legs and now has a stander. He also got AFO's for his feet and bowed legs. And we are now waiting on an awesome stroller for him.

We just had our shunt checked in March and everything looked great. A whole lot more parts of his brain has filled in and even a little more fluid has drained out. So we seem to be heading in the right direction.

Below are some pictures of our last months. Now we have some teethers : )

teeth smilers